Patient Experiences: Haemophilia and Inihibitors

Inhibitors affect a significant majority of those born with haemophilia and while for most they are successfully managed, for some they are poorly controlled and the consequences are an ongoing issue effecting quality of life. Working with the Haemophilia Society and Fiona McAndrew we conducted a series of workshops with healthcare care professionals and members of the haemophilia community and their carers to prioritise the issues affecting the community and develop campaigning and educational opportunities for the charity.